Meet the inspirational Aiza and Subhaan

We would love to introduce to all our supporters another of our inspirational CCF families we have supported financially.
Aiza and Subhaan who both have a Neurological disorder, global development delay and Dravet syndrome causing severe complex epilepsy making both siblings wheelchair bound. They both require 24-hour care by their parents who have had to leave their jobs to give their children the care they need. At 8 months old Subhaan’s development regressed he was treated with steroids but did not show any response to the medication. Subhaan is non-verbal but will smile and giggle in response.

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Meet Evie – An inspirational CCF super hero

We would love to introduce to you all our newest CCF Family the beautiful Evie from Teesside. This very brave 4-year-old little girl was diagnosed with Dilated Cardiomyopathy when she was a baby and is now urgently waiting for a heart transplant. Evie has been living in the Children’s Heart Unit of the Freeman Hospital…

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Joshua – Such a Brave CCF Family

Joshua has a life-limiting illness called Juvenile Metachromatic Leukodystrophy (MLD), which has no cure. This rare progressive neurological condition affects the white matter of the brain. As a result of this, Joshua has experienced regression in his motor and cognitive skills since his diagnosis. Joshua can no longer walk and entirely relies on his mother…

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Vinnie – An Inspirational CCF Family

At just 9 weeks old, this brave little boy was diagnosed with Spinal Muscular Atrophy Type 1. His parents Kelly and Andrew were told the devastating news that Vinnie would not live past 1 year old. His strength and determination proved them wrong, and he is still here fighting daily. Kelly spent every day searching…

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Reggie receives an award!

Reggie is a little warrior from Cumbria. He was born with a complex heart condition; he’s faced incredible challenges since day one. Reggie’s heart wasn’t fully developed, making every beat a struggle. By age 1, he’d already conquered multiple surgeries, fighting for each breath. His amazing parents, Anouska and Chris, became his superheroes. They learned…

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Ella & Chloe

We are honoured to be able to support The Barden Family, our 87th CCF family. Jodie, Luke, Ella, Alex, Chloe and Mia are such an inspirational family, but sadly they will only be a family of 6 for a short time. Both Ella and Chloe have been diagnosed with the life limiting illness Cockaye Syndrome…

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Alfie

The Charlie Cookson Foundation receive many applications for support, it is an extremely hard job for the Trustees to fully assess each one and choose our CCF Families. Some applicants are immediately in need of our financial support, the parents/parent are at their very lowest and are almost suffocating due to their heartache and financial…

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Luke

The CCF Families we support are incredibly strong, most people reading about their day to day lives find it very difficult to imagine what they go through. Some think that they just could not cope! The parents/parent we financially support were once in this situation, on the outside of the glass looking in at families…

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Ayden

Our Foundation receives many applications for support, it is an extremely hard job for the Trustees to fully assess each one and chose our CCF Families. Some applicants are immediately in need of our financial support, the parents/parent are at their very lowest and are almost suffocating due to their heartache and financial burdens. This…

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Max

As our supporters already know the stories of our CCF Families are written by Charlie’s Mammy. To give you an insight even further into the daily lives of our very brave CCF Families, we kindly asked the truly inspirational Mother of Max Hewison, Lisa to share her feelings and incredible story with you all. As…

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